Wish you all could see how cute Elijah looked in his latest 'dew-rag' - a turban of gauze covering all the wires glued to his head! We'll post a picture soon. He did really well through all the discomfort and glue and funny smells of the EEG. He was hooked up overnight to check his brain wave /seizure activity, all the while being monitored on a videocam. We won't know the results for another week, but our neurologist is happy with Elijah's current level of seizure control and also with the medications he's on. So that's great!
We are thankful to be in a place where Elijah can get good care and we can be assured that he's getting the help he needs for now. He was fitted for a little "kid cart" (like a special stroller) today!! I am so, so excited about having some options for him instead of constant holding. The kid cart will give him the extra support he needs to be comfortable. So far, Elijah doesn't like his new stroller, but we'll introduce it gradually. We're so BLESSED to have ways to position Elijah and help him explore the world.
In the Philippines, Ate Minda's friend was a single mother raising a 12-year-old girl with cerebral palsy. She lived on an income of about $20 a month, and the little girl didn't have any equipment. Every time the little girl needed to be moved, the mother would have to carry her. Ate Minda said the situation was "mahirap, mahirap, mahirap" (very, very difficult).
Will you thank the Lord with us that God has provided so well for our little guy? We know we are very blessed. We are blessed to HAVE our little Elijah, who has a sweetness all his own. We are challenged to grow and are molded to be more like our Father because of Elijah. I don't think we could love anyone more. That doesn't mean it's always easy or fun to take care of him...but God is teaching us about TRUE love. Love when we don't feel like loving, love when it requires sacrifice.
We love you guys and thank you for your prayers.
3 comments:
HI Julie...praying for you and your Men :) Thanks for the updates...so glad that you are now getting some equipment, I am likewise SO very thankful for the blessing of all the technology for all the options for out little men that need the extra help to get around :) (and for us mamma's backs too!! :)
LOVE you and praying for you all...
Lizy for the bunch
Julie, you are so amazing, I love how God is working through you and how you give Him the glory. I am so thankful that Elijah is getting the stroller.
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