Wanted you all to know that Elijah has started having seizures. We took him to the neurologist yesterday because we were concerned about a few things, and he basically took one look at Elijah and said "he's having seizures". The type of seizure is called 'myoclonic jerks', and that's about all we know. From what we understand, anyone with a brain injury is vulnerable at any point to begin having seizures. So right now, Elijah has started on medication (Depakene) and will have an EEG tomorrow to further evaluate what should be done.
When we got home from the neurologist, we started documenting what he said were seizures, and it looks to us like Elijah is averaging 1-2 seizures per minute. That seems like a crazy amount to us.
Elijah had a major change in his diet less than two weeks ago (switching from Momma's milk to formula and semi-solids) and the neurologist believed that could have something to do with this sudden occurance (at least the visible presence) of seizures.
We have greatly struggled (hours and hours of effort) in the past week to get Elijah to eat, and it seems like this is probably leading towards getting a G-tube for him. So we are investigating pediatric surgeons here for the end of the week or beginning of next.
We're surprised and a bit overwhelmed at the unexpected changes in Elijah's life...but just like with anything else we encounter, God asks for us to trust Him. We have a LOT of peace, just knowing that Elijah belongs to his Maker, and the One who made him knows all the intricacies of his brain as well.
Thanks for praying for us to make good decisions! We send our love.
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